It’s been a while. I haven’t written a new post since May. If you’ve read previous posts on the pain of CRPS you’ll know how it sometimes affects my creativity.
Chronic pain knocks the stuffing out
It’s like there’s no energy left for anything other than crawling back into bed. With an extra pillow to support the throbbing arm. With a hot water bottle to ease the painful shoulder. With a heated lavender pack under your neck. Sexy, huh?
In the early days my hand was swollen. If you Google images for a CRPS hand guess whose comes up?
I found I could use the keyboard with one hand but sitting at the desk in constant pain didn’t get my head in the right place for writing, especially the kind of fiction beloved by women’s magazines. Besides, my head was in a fog most of the time due to side effects of various medications. But I could edit. So, little by little I managed to get my first two novels out.
Oh, that seems so long ago.
Where my CRPS is now
The swelling has gone now. Thanks to early intervention my claw of a hand is more user-friendly. (You cannot peel a potato with one hand, not to mention putting on a bra!)
Now I can do most tasks beyond my capabilities at the outset. And I’m grateful for that. I still drop things and take twice as long as other people at the supermarket cash desk but if I have a word with the cashier beforehand they’ll go more steadily for me. Top marks to Tesco on this one – always happy to help.
But it seems my CRPS has spread to other places in my body. It’s gastro-intestinal stuff now, people. Look away now if the subject is too distasteful.
I have cyclical vomiting and diarrhoea. And it’s becoming more frequent. I’ve tried to ascertain which foods might be culprits and I know now to avoid heavily fatty meals but, still, some days the cycle begins without any reason, it seems to me.
I have an appointment to see my doctor next month which, by coincidence is CRPS awareness month.
My doctor knows how I feel about taking medication. I control the amount I take. Rigorously control. However, as I realise I’m a candidate for osteoporosis due to the CRPS I’m going to ask for a Vitamin D check. If I can avoid further damage to my bones by taking a vitamin supplement, I will swill it down gladly.
In the meantime, cyclical vomiting permitting, I continue with my writing endeavours.
The Sandman and Mrs Carter is under review with a publisher. I’m also revisiting Queer as Folk, my second collection of short stories.
And I’m getting my orange outfit ready for CRPS Awareness Day.